Monday, October 31, 2011

Happy Halloween

{pumpkin little}

Just when I feared this costume may have made its way into the donate pile last fall, I found it buried in a box of treasures.  Now we have a picture of each of our babes wearing the fuzzy, orange least  for a quick picture.  

Sunday, October 30, 2011

Thursday, October 20, 2011

Sunday, October 16, 2011

Saturday Morning Stroll

This weekend Gabe's GEMs cheerful stepped out in support of our little guy. We hardly needed to put one foot in front of the other as we blew through the route. Never mind the clouds, chill, and WIND - the weather was no more unpredictable as the daily ups and downs of living with SB.  We've learned to make the best of it and look for the silver linings.  

And make the best of it we did...

In an effort to raise awareness for all those living with Spina Bifida, as well as to raise funds to support our community, the first West MI Stroll N Roll was a great success.  According to our amazing organizers, Leigh & Emily, initial counts show the event raised over $20,000!

Thank you to all of you who continue to walk along side our family and our new"extended family."

Tuesday, October 11, 2011

Be Aware

October is Spina Bifida Awareness month.  This accurate sentiment was written by another momma and shared on Facebook.  To which I say, "like. like. like."

Spina Bifida Awareness:
 You should be aware that having a child with SB may cause
 increased motivation to help others,
 a newfound perspective in times of trial,
 a desire to enjoy the little things & 
a commitment to change the way the world defines "disability".

 Studies show that raising a child with SB will
 induce strong feelings of  gratitude for even the simplest of milestones &
 produce a willingness to do anything,  talk to anyone,  try any method necessary
 to make life better for your child.

Side effects include feelings of 
worry, fear, uncertainty, and anger 
all tempered with love, faith, determination and hope.

 Having a child with SB is not easy
but loving him is !

It was also interesting to look back at my thoughts on Spina Bifida Awareness from last October.  Our sweet babe was just weeks old and had already taught us so much.