Friday, August 5, 2011

Sure of What We Hope For

This week took a *small turn with a whirlwind of appointments and phone conversations, which have all lead up to some big news for our babe.  

Gabe had an unexpected appointment with the pediatrician this week where we discovered  he had been dealing (still with a smile) with a double ear infection. My prompt to get an office visit came mid way through a conversation with his nurse when I discovered yellow gunk oozing from his ears.  The goo turned out to be the leftovers from a ruptured ear drum.  Poor buddy!  He is feeling much better after several day with a few good meds. 

Coincidentally In His perfect timing, this unscheduled visit with our doctor (along with encouragement from a few good friends) jumpstarted our plans to pursue a second opinion on an alternative treatment to dealing with Gabe's ever enlarging ventricles.  After several conversations with our current specialists, our insurance companies, and tentative travel accommodations all of the pieces have quickly fallen into place.

While we would prefer not to be talking about brain surgery at all, we are very thankful to be headed to Boston to consult with the leading pediatric neurosurgeon in the country who is paving a new way for babies with congenital hydrocephalus. We will do our best to keep you in the loop in the weeks to come!


  1. Poor baby, I'm so glad he's doing better after the meds.

    Good luck with your visit in Boston!

  2. poor buddy!!!! at leaet he keeps on smiling! let me know if you need anything!

  3. i too, wish we didn't have to talk about brain surgery but i am THRILLED to hear that you are going to Boston!! I heard him speak and he is A-Mazing! Please keep us posted! You all will certainly be in our prayers!

  4. Oh I'm so glad this is working out! When are you going? I can't wait to hear all about it!

  5. Poor baby! Praying for you as you head to Boston - excited for you and Gabe that he will be in such good hands and receive the best care. We'll be following your new journey and praying along the way. Love you!

  6. That is awesome you're headed to Boston! That's exactly what I would be doing.


We appreciate all of your comments and love.
Encouraged by you,
Gabe & his Momma